As of July 2025, a total of 4,361 thalassemia patients have been registered nationwide on sickle cell portal, with 2,579 of them being children under the age of 12.

In 2023, a dedicated thalassemia module was integrated into the Sickle Cell Portal to enable states to enter records of existing thalassemia patients. Regular monitoring, follow-up, and data entry for screening are being carried out on the National Portal, strengthening surveillance and care for thalassemia patients across the country.

The primary responsibility of management of Thalassemia along with raising awareness lies with the respective State/UT Governments. However, under National Health Mission (NHM), support is provided to States/UTs to strengthen their healthcare system including support for prevention and management of Thalassemia at public healthcare facilities, provision of Blood Bank facilities, Day Care Centre, Medicines, Lab services, IEC activities and training of HR etc. based on the proposals submitted by the States/UTs in their Programme Implementation Plans.

Union Health Ministry, in association with Coal India limited (CIL), is implementing a scheme namely Thalassemia Bal Sewa Yojana (TBSY) wherein financial assistance up to Rs.10 lakh is provided to eligible patients for Bone Marrow transplants (BMT) from CIL Corporate Social Responsibility (CSR) funds. This scheme provides for BMT in 17 empanelled hospitals spread across the country.

The Union Minister of State for Health and Family Welfare, Smt. Anupriya Patel stated this in a written reply in the Rajya Sabha today.

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MV

HFW/ Update on thalassemia patients across country /29 July, 2025/2

(Release ID: 2149694)