Under National Health Mission (NHM), support is provided to States/UTs to strengthen their healthcare system including support for prevention and management of Thalassemia at public healthcare facilities, provision of Blood Bank facilities, Day Care Centre, Medicines, Lab services, IEC activities and training of HR etc. based on the proposals submitted by the States/UTs in their Programme Implementation Plans.

As on 26^th March 2025, as per data updated by States on National Portal, out of 15,87,903 individuals screened for Thalassemia, a total of 5,037 have been identified as diseased and 50,462 as carriers of Thalassemia.

Comprehensive guidelines on Prevention and Control of Hemoglobinopathies in India- Thalassemia & Sickle cell Disease and other variant Hemoglobins (2016) had been shared to assist the States/UTs for management of Haemoglobinopathies including Thalassemia. The guidelines detail the strategies for management of Thalassemia disease including Thalassemia major (Blood transfusion therapy with packed red blood cell, iron chelation for iron overload, monitoring and management of complication and psychological support etc.) and non-transfusion dependent Thalassemia (NTDT) etc.

Union Health Ministry is implementing a scheme namely Thalassemia Bal Sewa Yojana (TBSY), in association with Coal India limited (CIL), wherein financial assistance up to Rs.10 lakh is provided to eligible patients for Bone Marrow transplants (BMT) from CIL Corporate Social Responsibility (CSR) funds. This scheme provides for BMT in 17 empanelled hospitals spread across the country.

The Union Minister of State for Health and Family Welfare, Smt. Anupriya Patel stated this in a written reply in the Lok Sabha today.

****

MV

HFW/Steps taken by the govt for prevention and management of Thalassemia/04 April 2025/1